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‘Let’s help Alexis’ fund launched for Killarney girl with rare condition

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TRUST: The 'Let's help Alexis' trust has been set up to raise funds for Stephen and Teresa O'Mahony's four-year-old daughter Alexis to help with her care needs. Photo: Michelle Crean

 

By Michelle Crean

 

A new charitable trust has been set up this week to support a four-year-old Killarney girl who suffers from a rare condition.

A committee of five have launched the 'Let's help Alexis' fund online including a GoFundMe page which has so far raised almost €4,000 of their €50k goal to give Alexis a comfortable life as she grows older.

Currently her parents Steve and Teresa are 24 hour carers for the little girl who has a rare primary metabolic condition called Pyruvate Dehydrogenase Deficiency which has led to a brain abnormality called Ventriculomegaly as well as cerebral palsy, epilepsy, global developmental delay, double hip displacement, cortical visual impairment and sleeping difficulties. Some immediate supports include upgrading their small Seat Leon to a wheelchair accessible vehicle as she has outgrown her car seat making it difficult and uncomfortable for her on long journeys to Dublin for necessary appointments.

The committee is made up of five people who are not related to Alexis' parents and will make all the financial decisions independently of both Steve and Teresa to prioritise Alexis' needs.

"A few people suggested to us a few years ago to set it up," Steve told the Killarney Advertiser this week.
"The committee are planning a number of fundraisers and have set up the fundraising page. I'm delighted that it's independent of us. It's about what is in the best interest of Alexis and the committee will decide. We're very grateful to them for giving up their time."

  He explained that Alexis is now almost 15kgs and has outgrown her car seat and that as their car is compact it's a struggle to fit everything they need for the long trips to appointments in Dublin.

"She is getting big now and her car seat is too small. She has been sanctioned for a wheelchair but it won't be suitable for our car. She needs a van with a ramp for the wheelchair. Before you could stop and lift her out but it's harder now. Even stopping on the long trips she's now too heavy for the nappy changer when we take a break in places like Obama's and then there's health and safety - especially now. With a van we'd have the space for everything. She's on a special Ketogenic diet and food for 24 hours has to be made up the night before and brought with us. And then there's the medicine bags and change of clothes."

Funds raised would also go towards extra physio for her, he added.

"She's getting private and public physio but it would mean we can pay for more private sessions. We're also looking into therapeutic horse riding."

And with the physio, which is done at home, comes an increase in the cost of heating oil which is double what most people spend, he added.

"The trust will mean that Alexis will have everything she needs as she grows older. We just want to give her the best chance possible, not just for now but for the years ahead."   

He added that messages of support from all over have been pouring in since the committee launched the trust.

"You see the good in people. It lifts your spirits and it just shows that everybody in society is equal."

To make a donation to help the family go to GoFundMe: Let's Help Alexis and you can also search the same name on Facebook to find out more.

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Powerful photo display at St Mary’s brings Ukraine conflict home

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A unique photo exhibition has been installed on the railings outside St Mary’s Church of Ireland in Killarney town centre, offering a stark reminder of the human cost of the war in Ukraine. 

Organised by the local branch of the ‘Future of Ukrainian Nation’, the display serves as a bridge between the local community and the families who have fled to Kerry.

The display features portraits of several Ukrainian and Irish soldiers who have died or remain missing in action, as well as members of the media killed on the front line. 

Most poignantly, it captures the homes and memories of refugees now living in Killarney, showing the physical destruction of the lives they left behind.

Iryna Synelnykova, a teacher and activist with the “Future of Ukrainian Nation,” shared the story of her family’s summer house. The home was located on Potemkin Island in the Kherson region, along the Dnipro River. Iryna recalls countless happy moments shared there, but tragedy struck on July 6, 2023. Following the explosion of the Kakhovka hydroelectric station, the island and the house were submerged. As the water receded, Russian artillery inflicted further destruction. The area is now mined and occupied by military personnel, leaving the family with no way to return.

Another selection of photos captures the destroyed apartment building of Maryna Ivashenko in Mariupol, which was levelled by Russian attacks. 

The exhibition also featured the family home of another  resident in Mariupol.

 In that instance, 17 shells struck the house, with one hitting the kitchen while the family was hiding in the basement. Though they miraculously survived and escaped to Killarney, they have no home to return to.

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Beaufort Engineer honoured with national emerging leader award

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Beaufort Engineer honoured with national emerging leader award

Beaufort native Danny Pio Murphy has been named the recipient of the Emerging Leader Award at the National Diversity & Inclusion Awards 2026.

The ceremony, hosted by the Irish Centre for Diversity, recognises individuals who have made significant strides in promoting inclusion and belonging within Irish workplaces.
Danny Pio, a Chartered Engineer and Associate Director at DBFL Consulting Engineers, was singled out for his work in transforming the engineering profession. As a founding member of DBFL’s internal EDI team, he was instrumental in developing the company’s first Diversity Action Plan in 2020.
This initiative led to the firm achieving the Gold Investors in Diversity Accreditation in 2025, a standard held by only 28 organisations across the country.
Beyond his professional role, Danny Pio co-founded and currently chairs the Engineers Ireland Inclusion and Diversity Society. In this capacity, he helps shape inclusive practices for the body’s 30,000 members and influences the wider profession of over 75,000 engineers.
Speaking at the awards, Danny Pio highlighted the personal nature of his work: “This work has always been personal to me.
It comes from knowing what it feels like to question whether you belong in a space. Sometimes leadership is about being the person who tells others, ‘You belong here.’”
He further noted that diversity is essential for the future of the industry, stating that solving challenges like housing and climate change requires a broad range of perspectives.
While leading national transport and infrastructure projects, the Beaufort man hopes this recognition will encourage more young people from underrepresented backgrounds to pursue careers in engineering.

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