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Family pay tribute to their brave little girl who lost battle with rare heart condition

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TRIBUTE: Caroline and Michael Daly pictured with Lily Ellen and her big sister Sarah.

 

By Michelle Crean

A Ballyhar family, whose 20-month-old little girl lost her brave battle with a rare life-limiting heart condition have praised hospital staff for the care she received. Little Lily Ellen Daly from Lisheenacanna, Ballyhar was born with an aggressive Pulmonary Vein Stenosis (PVS) in June 2019.

Diagnosed at just eight weeks old, the brave little girl underwent open heart surgery at just 12 weeks old in Crumlin Children's Hospital. Just a month later she was admitted to palliative care but her parents Caroline (O'Shea) and Michael Daly, vowed to do everything possible to help her. However, as Crumlin had never performed a sutureless repair operation as her condition was so rare her parents decided to go to New York to seek help.

"She was a very happy little girl," her mom Caroline, who is currently on leave from her accountancy job at Prima Finance Killarney, told the Killarney Advertiser.

"She loved her family and her sister. For everything she went through she was very content, you wouldn't think there was anything wrong with her. We got an extra 15 months with her. The surgery in New York was a final option for Lily and sadly it was not successful. Crumlin went above and beyond but they had never done anything like that before for her condition. It was just that the condition was life-limiting."

Sadly, Lily Ellen passed away peacefully on February 26 in the arms of her loving parents in the Intensive Care Unit of Crumlin Children's Hospital.

Following Mass of the Angels in St Gertrude's Church, Firies, Lily Ellen was laid to rest in new Kilnanare Cemetery.

Caroline added that they became part of the Crumlin heart family saying the staff went above and beyond in their care for Lily Ellen.

"It meant so much to us."

At last week's Killarney Municipal online meeting Mayor Brendan Cronin offered his sympathy to the Daly family as Michael works as an engineer with Kerry County Council.

“On a sad note, the local authority extends sympathy to Michael Daly of Ballyhar. He lost baby Lily Ellen Daly during the week. It is an awful tragedy. Michael is a well-known and respected member of Kerry County Council staff.”

The family have asked for donations to be made to The Heart Centre in Crumlin Children’s Hospital www.heartchildren.ie.

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Dancing classes set to unite communities

By Michelle Crean There’s no language barrier when it comes to dancing – which is why one local group is organising classes to unite communities. KASI, the Killarney Immigrant Support […]

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By Michelle Crean

There’s no language barrier when it comes to dancing – which is why one local group is organising classes to unite communities.

KASI, the Killarney Immigrant Support Centre, has teamed up with dance instructor John Moriarty to teach both Ukrainians and multiple cultures living in Kerry Irish set dancing steps from next week.

The first class will take place on Tuesday evenings, starting next week (September 27) at St Mary’s Parish Hall at 6.30pm and all are welcome to join.

The idea is to help Ukrainians living in Killarney and Kerry to come and have fun and get to know locals better, KASI coordinator, Marilyn Catapat-Counihan, explained to the Killarney Advertiser.

“We have a women’s group for all ages where we do crochet, sewing and art and crafts, where they can talk which is good. I had the music on and they were dancing. I asked if they would like to do dancing classes so I organised it with John Moriarty who is well known in Killarney.”

She added that the women are very excited to learn set dancing and get to know other people from the area.

“Sometimes when you meet new people the language can be a barrier and when you’re dancing everybody is moving. He will open it to everyone so there’ll be integration, it’s fun as well. They are all very excited.”

To find out more contact John on 086 1579381.

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Multiple Sclerosis Walk celebrates 20 years

By Sean Moriarty The rising cost of fuel is already having a negative effect on charity events with some limiting numbers. On October 9, the annual Multiple Sclerosis South Kerryv Walk […]

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By Sean Moriarty

The rising cost of fuel is already having a negative effect on charity events with some limiting numbers.

On October 9, the annual Multiple Sclerosis South Kerryv Walk takes place over the Old Kenmare Road.

First run in 2002, this year’s event will celebrate 20 years since its foundation but two years were lost as a result of the pandemic.

This year’s walk will be limited to 150 people – three coach loads – so event organisers can cut back on running costs.

It will only be possible to participate in this year’s event if walkers pre-register.

“Walkers must raise at least €40 to make it worthwhile,” organiser John O’Shea told the Killarney Advertiser.

“Spaces are limited, 150 people equals three coaches and we need smaller coaches to get into the start of the Old Kenmare Road as that is just a bog road. We have limited numbers for cost and operational reasons.”

Mr O’Shea thanked event sponsors O’Callaghan Coaches and The Gleneagle Hotel for their support of the event.

Registration forms can be obtained by calling John on 087 2348824.

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