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Family pay tribute to their brave little girl who lost battle with rare heart condition

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TRIBUTE: Caroline and Michael Daly pictured with Lily Ellen and her big sister Sarah.

 

By Michelle Crean

A Ballyhar family, whose 20-month-old little girl lost her brave battle with a rare life-limiting heart condition have praised hospital staff for the care she received. Little Lily Ellen Daly from Lisheenacanna, Ballyhar was born with an aggressive Pulmonary Vein Stenosis (PVS) in June 2019.

Diagnosed at just eight weeks old, the brave little girl underwent open heart surgery at just 12 weeks old in Crumlin Children's Hospital. Just a month later she was admitted to palliative care but her parents Caroline (O'Shea) and Michael Daly, vowed to do everything possible to help her. However, as Crumlin had never performed a sutureless repair operation as her condition was so rare her parents decided to go to New York to seek help.

"She was a very happy little girl," her mom Caroline, who is currently on leave from her accountancy job at Prima Finance Killarney, told the Killarney Advertiser.

"She loved her family and her sister. For everything she went through she was very content, you wouldn't think there was anything wrong with her. We got an extra 15 months with her. The surgery in New York was a final option for Lily and sadly it was not successful. Crumlin went above and beyond but they had never done anything like that before for her condition. It was just that the condition was life-limiting."

Sadly, Lily Ellen passed away peacefully on February 26 in the arms of her loving parents in the Intensive Care Unit of Crumlin Children's Hospital.

Following Mass of the Angels in St Gertrude's Church, Firies, Lily Ellen was laid to rest in new Kilnanare Cemetery.

Caroline added that they became part of the Crumlin heart family saying the staff went above and beyond in their care for Lily Ellen.

"It meant so much to us."

At last week's Killarney Municipal online meeting Mayor Brendan Cronin offered his sympathy to the Daly family as Michael works as an engineer with Kerry County Council.

“On a sad note, the local authority extends sympathy to Michael Daly of Ballyhar. He lost baby Lily Ellen Daly during the week. It is an awful tragedy. Michael is a well-known and respected member of Kerry County Council staff.”

The family have asked for donations to be made to The Heart Centre in Crumlin Children’s Hospital www.heartchildren.ie.

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Contactless payments launched on Local Link services

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Passengers using TFI Local Link Kerry services in Killarney and across the county can now pay for their journeys using contactless card payments.

The National Transport Authority (NTA) confirmed the rollout this week, allowing commuters to simply tap their debit card, credit card, or mobile devices, such as Apple Pay and Google Pa, when boarding.

The move is designed to offer more convenience for those using high-frequency rural and regional routes.

In Killarney, the new payment option will be available on the TFI Anseo town services, which have seen a significant increase in passenger numbers since their introduction.

The contactless system is currently available for single journey fares, while those using daily or weekly passes can continue to use the Leap website or the TFI Leap Top Up App.
Alan O’Connell, General Manager of TFI Local Link Kerry, welcomed the modernisation of the fleet.

“The introduction of contactless payments is another welcome step forward for public transport in Kerry,” he said. “It complements other major projects in the county, including the expansion of TFI Local Link services and the delivery of TFI Anseo in Killarney, which is proving to be another great initiative.”

While the new technology offers a modern alternative, traditional payment methods are not being phased out. Cash payments, TFI Leap cards, and Free Travel Cards all remains fully valid across the network.

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How will our Kerry TDs vote tomorrow?

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Tomorrow, Sinn Féin will be tabling a motion of no confidence against the Government after the protests that took place nationwide during the week.

Earlier today we asked our readers how would they vote in a no confidence motion against the Government?

Most of our readers said they would vote no confidence, while some said, yes they do have confidence in the Government.

One reader said: “Vote confidence. The only proper leadership over the last few days came from government. Courage came when needed despite how unpopular it looked in the moment. By contrast, opposition politicians wanted the country to burn to suit themselves”.

Another reader stated: “No confidence. Shambolic and heavy handed handling of protests this past week”.

However, some people didn’t have any confidence in either side with a reader saying: “No confidence in the no confidence! Different wings of the same bird! We need a complete overhaul of the political system”.

We asked the question to our 5 Kerry TDs before lunch-time today, asking them what their vote will be tomorrow.

We received one reply from Sinn Féin’s Kerry TD Pa Daly.

He will be voting no confidence in the Government tomorrow along with his party.

Other media outlets are reporting that Independent TD Danny Healy-Rae is undecided at the moment.

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