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Family pay tribute to their brave little girl who lost battle with rare heart condition

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TRIBUTE: Caroline and Michael Daly pictured with Lily Ellen and her big sister Sarah.

 

By Michelle Crean

A Ballyhar family, whose 20-month-old little girl lost her brave battle with a rare life-limiting heart condition have praised hospital staff for the care she received. Little Lily Ellen Daly from Lisheenacanna, Ballyhar was born with an aggressive Pulmonary Vein Stenosis (PVS) in June 2019.

Diagnosed at just eight weeks old, the brave little girl underwent open heart surgery at just 12 weeks old in Crumlin Children's Hospital. Just a month later she was admitted to palliative care but her parents Caroline (O'Shea) and Michael Daly, vowed to do everything possible to help her. However, as Crumlin had never performed a sutureless repair operation as her condition was so rare her parents decided to go to New York to seek help.

"She was a very happy little girl," her mom Caroline, who is currently on leave from her accountancy job at Prima Finance Killarney, told the Killarney Advertiser.

"She loved her family and her sister. For everything she went through she was very content, you wouldn't think there was anything wrong with her. We got an extra 15 months with her. The surgery in New York was a final option for Lily and sadly it was not successful. Crumlin went above and beyond but they had never done anything like that before for her condition. It was just that the condition was life-limiting."

Sadly, Lily Ellen passed away peacefully on February 26 in the arms of her loving parents in the Intensive Care Unit of Crumlin Children's Hospital.

Following Mass of the Angels in St Gertrude's Church, Firies, Lily Ellen was laid to rest in new Kilnanare Cemetery.

Caroline added that they became part of the Crumlin heart family saying the staff went above and beyond in their care for Lily Ellen.

"It meant so much to us."

At last week's Killarney Municipal online meeting Mayor Brendan Cronin offered his sympathy to the Daly family as Michael works as an engineer with Kerry County Council.

“On a sad note, the local authority extends sympathy to Michael Daly of Ballyhar. He lost baby Lily Ellen Daly during the week. It is an awful tragedy. Michael is a well-known and respected member of Kerry County Council staff.”

The family have asked for donations to be made to The Heart Centre in Crumlin Children’s Hospital www.heartchildren.ie.

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Arbutus Hotel’s 100th anniversary honoured at IHF Conference

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The centenary of the historic Arbutus Hotel took centre stage this week at the Irish Hotels Federation (IHF) Annual Conference.

Held at the Gleneagle Arena, the gathering of over 300 hoteliers from across the country provided a platform to celebrate the 100-year legacy of the Buckley family and their landmark establishment.


The story of the Arbutus began with Tim Buckley, who spent 14 years in New York working as a night porter and hackney cab driver to save the funds needed to buy the property he had admired as a young man.

After returning from America, Tim and his wife Julia Daly purchased what was then Russell’s Hotel in 1925, officially renaming and launching it as the Arbutus Hotel in 1926.

Julia Daly played a significant role in the hotel’s early success, having attended the Ramsgrange Cookery School in Wexford to ensure the food and hospitality standards were world-class from the outset.


Today, the hotel remains under the care of the Buckley family, with three generations having steered it through a century of Killarney’s tourism history, passing from Tim to his son Pat in the 1960s, and now run by Tim’s grandson, Seán Buckley.


Garrett Power, Chairman of the Kerry IHF, presented a bouquet of flowers to Roisin Buckley, Seán’s daughter and first cousin of international star Jessie Buckley, to mark the occasion. The presentation honoured both the hotel’s centenary and the family’s wider contribution to the town.

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Over €2K raised at Killarney premiere of Hind Rajab film

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Killarney for Palestine welcomed over 120 people to The Brehon on Sunday evening for the Kerry premiere of the Oscar-nominated film, The Voice of Hind Rajab.

The event served as a fundraiser and an important experience for the local community, highlighting the story of the five-year-old child killed in Gaza.
The evening raised over €2,000 in donations. These funds will be sent via mutual aid directly to five families in Gaza and to The Hind Rajab Foundation.
The film’s director, Kaouther Ben Hania, recently made headlines at the Berlin International Film Festival by declining the “Most Valuable Film” award at the “Cinema for Peace” gathering. Addressing the audience, she explained her decision to leave the trophy behind as a reminder of the lack of accountability for the deaths of Hind Rajab, her family, and the paramedics sent to save her.
“Peace requires justice and accountability, not glossy slogans,” Ben Hania stated, adding she would only accept such awards when peace is rooted in moral and legal obligations.
Killarney for Palestine holds regular updates on their social media pages and invites the public to join their monthly vigil at the Killarney Courthouse, held at 12 p.m. on the last Sunday of every month.

Over €2K raised at Killarney premiere of Hind Rajab film


Killarney for Palestine welcomed over 120 people to The Brehon on Sunday evening for the Kerry premiere of the Oscar-nominated film, The Voice of Hind Rajab.

The event served as a fundraiser and an important experience for the local community, highlighting the story of the five-year-old child killed in Gaza.
The evening raised over €2,000 in donations. These funds will be sent via mutual aid directly to five families in Gaza and to The Hind Rajab Foundation.
The film’s director, Kaouther Ben Hania, recently made headlines at the Berlin International Film Festival by declining the “Most Valuable Film” award at the “Cinema for Peace” gathering. Addressing the audience, she explained her decision to leave the trophy behind as a reminder of the lack of accountability for the deaths of Hind Rajab, her family, and the paramedics sent to save her.
“Peace requires justice and accountability, not glossy slogans,” Ben Hania stated, adding she would only accept such awards when peace is rooted in moral and legal obligations.
Killarney for Palestine holds regular updates on their social media pages and invites the public to join their monthly vigil at the Killarney Courthouse, held at 12 p.m. on the last Sunday of every month.

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