Connect with us

News

€20k raised for little Lil’s cancer battle

Published

on

0207113_35cbf175-a049-4ccb-9485-09a9f59345ec.JPG

By Michelle Crean

The family of a little girl diagnosed with a rare form of cancer have this week thanked the community - including those in Killarney where her mom worked - for raising a staggering €20,000 in just six days.

FUNDRAISER: €20k has been raised to help Lorraine and Dodi Sebestova whose seven-year-old daughter Lil was diagnosed with a cancerous tumour on her hand.

A GoFundMe was set up by a Killarney man for Lorraine and Dodi Sebest, whose seven-year-old daughter Lily (Lil) was diagnosed with a cancerous tumour on her hand, called an Alveolar Rhabdomyosarcoma, just days after her seventh birthday in July.

Colleague and friend, Jason Clifford, who is a Manager at the Dunloe Hotel, worked with Lorraine for the past 15 years and immediately set up the fundraising page to help the couple who gave up their jobs to be at Lil's side. On Wednesday evening Lil finished the first round of treatment which left her exhausted, after three weeks of intensive tests.

In total she has to undergo 25 weeks of chemotherapy and radiotherapy between Crumlin Hospital and St Luke's in Dublin. The couple, living in Spa Road in Tralee, also have four other children and Lorraine told the Killarney Advertiser that the money raised will be a lifeline for them as costs with travel and accommodation will add up.

Her parents say little Lil is staying strong and positive but has put down some bad days.

"She's doing very well," Lorraine said. "We get glimmers of her when she's not so beaten down. She's never been in hospital before and is a happy go lucky child. She has been going since she could walk at 10 months so when you put her in a small room her personality changes."

But she added that their "little warrior is putting up a good fight".

"It's rare, it [the cancer] occurs on the extremities. It's in her thumb and palm and spreading to her ring finger. She's had so many procedures already and has been through the most horrific battle. She is just the best. She is so scared all the time but pushes through it, she is so tough. She is a warrior and made for battle."

Lorraine added that she cannot thank the communities in Killarney and Tralee, her close knit neighbours, and colleagues in the Dunloe Hotel, for the massive support to help get them through this.

"We have four other kids at home that my mom is minding. We both gave up our jobs as we want to do this together. We're a great family and we're strong. We'd be lost without our neighbours and the communities. Jason set up the GoFundMe, which we are grateful for and the generosity has been overwhelming. So many people are dropping in stuff to us including petrol vouchers. It has been unbelievable."

Jason added that Lorraine is a "vibrant and positive person", and had no hesitation setting up the page to help.

"She is just one of those girls everyone clicks with. I just wanted to do something. We think the most of her here."

To make a donation go to GoFundMe: Help Lily Anna Sebestova

Advertisement

News

Killarney welcomes home Kevin ‘The Kingdom Warrior’ Cronin

Boxer Kevin ‘The Kingdom Warrior’ Cronin received a warm homecoming in Jimmy O’Brien’s Bar on College Street on Sunday evening following his victory in Dublin last weekend, where he was […]

Published

on

Boxer Kevin ‘The Kingdom Warrior’ Cronin received a warm homecoming in Jimmy O’Brien’s Bar on College Street on Sunday evening following his victory in Dublin last weekend, where he was crowned Irish Light Heavyweight Champion.

Mayor of Killarney Cllr Martin Grady was on hand to officially welcome the new champion home, congratulating him on what he described as “a proud moment for Killarney and for Kerry sport.”
Cronin, who is sponsored by Jimmy O’Brien’s Bar, claimed the vacant national title after a hard-fought ten-round battle against Cork’s Cathal Crowley at the National Stadium, Dublin, on Friday night last.
The Kerry fighter won by majority decision, with the judges scoring the contest 95-94, 97-93 and 95-95. The result capped off years of dedication and hard work for Cronin, who now holds an 11-3-1 professional record.
Speaking at the homecoming, Cronin thanked his supporters and sponsors for their backing throughout his career.
“It’s unbelievable to bring this title to Kerry,” he said. “The support from home means everything. This one’s for everyone who’s been with me from the start.”
Crowds packed into Jimmy O’Brien’s Bar to celebrate the achievement, with music, photos and plenty of local pride on display.

Continue Reading

News

Concerns over future of St Mary of the Angels

Two Kerry TDs have voiced concerns over the future of St Mary of the Angels and St Francis Special School in Beaufort, highlighting the urgent need for respite services for […]

Published

on

Two Kerry TDs have voiced concerns over the future of St Mary of the Angels and St Francis Special School in Beaufort, highlighting the urgent need for respite services for children and adults with profound disabilities and special needs.

The campus, set on lands generously donated by the Doyle family, offers 30 acres of grounds, existing buildings, and services, making it a valuable asset for the provision of respite care in Kerry. TD Michael Cahill emphasized that the Doyle family’s wishes should be respected, and that the grounds should be made accessible immediately.
“The special needs community in Kerry has a major respite crisis and families don’t have time to wait. Families need help — they are not asking for full-time residential care but respite care, a break, a helping hand,” Deputy Cahill said.
He added that a bespoke approach is needed to meet the individual needs of children attending St Francis Special School. “Many of the children in the county with profound needs need a safe haven where they can roam the grounds freely, and St Mary of the Angels offers this.”
Deputy Cahill has accompanied several Ministers to the Beaufort campus to highlight its value to Disability Health Service providers. A working group has been formed including St John of Gods, the HSE, representatives of residents at St Mary of the Angels, and St Francis Special School, to explore options for maintaining and expanding respite services.
“Parents are worn out and at the end of their tether. This needs to be dealt with expeditiously, in an environment of cooperation between the relevant Government Departments of Health, Disability, and Education. We need to get this across the line urgently and put it permanently in place,” he said.
Deputy Cahill pointed to the current shortfall of respite services in Kerry. “As of now, Cunamh Iveragh respite in Cahersiveen is only open Friday to Sunday, running at half capacity — two adults per night instead of four. The issue is staffing, and the HSE will not release funding to open full-time. The Beaufort campus is available and should be utilised as parents are crying out for overnight respite. Cooperation and compassion could see this done quickly.”
TD Danny Healy Rae echoed these concerns during a Dáil speech this week. “We are still short of respite beds on the southern side of the constituency. Families caring for people with disabilities just want a break, but there is nowhere available locally. Places are being offered only in Tipperary or Meath for those needing new residential care. It makes no sense. St Mary of the Angels in Beaufort has 40 or 50 acres of grounds that could be expanded, with facilities already in place such as swimming pools. It could be developed as a model for the rest of the country.”
Both TDs are urging the Government and the HSE to take immediate action to utilise the Beaufort campus for respite care, in line with the intentions of the Doyle family and the needs of Kerry families.

Continue Reading

Last News

Sport