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€20k raised for little Lil’s cancer battle

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By Michelle Crean

The family of a little girl diagnosed with a rare form of cancer have this week thanked the community - including those in Killarney where her mom worked - for raising a staggering €20,000 in just six days.

FUNDRAISER: €20k has been raised to help Lorraine and Dodi Sebestova whose seven-year-old daughter Lil was diagnosed with a cancerous tumour on her hand.

A GoFundMe was set up by a Killarney man for Lorraine and Dodi Sebest, whose seven-year-old daughter Lily (Lil) was diagnosed with a cancerous tumour on her hand, called an Alveolar Rhabdomyosarcoma, just days after her seventh birthday in July.

Colleague and friend, Jason Clifford, who is a Manager at the Dunloe Hotel, worked with Lorraine for the past 15 years and immediately set up the fundraising page to help the couple who gave up their jobs to be at Lil's side. On Wednesday evening Lil finished the first round of treatment which left her exhausted, after three weeks of intensive tests.

In total she has to undergo 25 weeks of chemotherapy and radiotherapy between Crumlin Hospital and St Luke's in Dublin. The couple, living in Spa Road in Tralee, also have four other children and Lorraine told the Killarney Advertiser that the money raised will be a lifeline for them as costs with travel and accommodation will add up.

Her parents say little Lil is staying strong and positive but has put down some bad days.

"She's doing very well," Lorraine said. "We get glimmers of her when she's not so beaten down. She's never been in hospital before and is a happy go lucky child. She has been going since she could walk at 10 months so when you put her in a small room her personality changes."

But she added that their "little warrior is putting up a good fight".

"It's rare, it [the cancer] occurs on the extremities. It's in her thumb and palm and spreading to her ring finger. She's had so many procedures already and has been through the most horrific battle. She is just the best. She is so scared all the time but pushes through it, she is so tough. She is a warrior and made for battle."

Lorraine added that she cannot thank the communities in Killarney and Tralee, her close knit neighbours, and colleagues in the Dunloe Hotel, for the massive support to help get them through this.

"We have four other kids at home that my mom is minding. We both gave up our jobs as we want to do this together. We're a great family and we're strong. We'd be lost without our neighbours and the communities. Jason set up the GoFundMe, which we are grateful for and the generosity has been overwhelming. So many people are dropping in stuff to us including petrol vouchers. It has been unbelievable."

Jason added that Lorraine is a "vibrant and positive person", and had no hesitation setting up the page to help.

"She is just one of those girls everyone clicks with. I just wanted to do something. We think the most of her here."

To make a donation go to GoFundMe: Help Lily Anna Sebestova

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New committee elected at Killarney Active Retirement AGM

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Killarney Active Retirement Association (ARA) had a large turnout for its annual general meeting, which marked a significant changing of the guard for the local organisation.

A special presentation was made to Nancy Hegarty, who is stepping back after serving the organisation for 33 years.

Throughout more than three decades on the committee, she worked to support the group across various roles at national, regional, and local levels.

Patricia Keane also stepped down from her position after completing her term.

The group extended its best wishes to both women for the future, noting that their experience remains a valuable asset to the association.

A new committee was formally elected at the meeting to lead the group forward. Joan O’Sullivan takes over as Chairperson, joined by Teresa Commins as Secretary and Helen Foley as Treasurer, alongside seven committee members who will take on supporting roles.

The group is now on its summer break after another busy season. Killarney Active Retirement Group meets every Friday from September to June annually at the KDYS hall from 2pm to 4pm.

The weekly meetings feature guest speakers, exercises, training sessions, shows, day trips, holidays, and tea dances.

The association welcomes new members, both male and female, to come along, have a cup of tea or coffee, make new friends, and participate at whatever level they feel comfortable with when activities resume in September.

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Book launch: Sister completes late brother’s Shipping Forecast sea kayak challenge

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Book launch: Sister completes late brother’s Shipping Forecast sea kayak challenge

A unique book promotional event will take place in the Beaufort Bar next week, telling the story of a sister who took to the sea to complete her late brother’s extraordinary adventure.

Katie Carr will speak at the Beaufort venue on Tuesday, June 23 at 7:30pm to launch her most recent book, Thundery at Times. The book follows her journey to honour her brother, Toby, who passed away in the middle of his challenge to paddle in every sea area of the BBC Shipping Forecast. Despite having never been in a sea kayak before, Katie decided to take over the expedition and finish what he started.

The upcoming talk connects her new perspective with her earlier work, Moderate Becoming Good Later, which she wrote in Toby’s voice as a tribute to his determination. Her latest book looks at the intense physical and emotional challenges of taking on the journey herself.

Six of the famous BBC Shipping Forecast area, Fastnet, Irish Sea, Shannon, Rockall, Malin, and Lund, reach the Irish coast. Five of the book’s chapters are set in Ireland, including a dedicated chapter on Kerry, making her upcoming visit to the county particularly meaningful.

The launch is being highlighted locally by Donal Dowd of Coolcaslagh, the retired Director of Cappanalea OETC, who accompanied Katie on the water during her journey.

“I accompanied Katie on one of her trips while she was completing the Shannon section, which commences in Valentia and stretches up as far north as Connemara in west Galway,” Donal said. “I encourage members of the public to attend what will be an entertaining event, as Katie is a most entertaining speaker, has great slides and video footage, and has a very interesting story to tell.”

The evening will include readings from the book, reflections on the writing and paddling processes, an audience question-and-answer session, and a book signing. Admission is open to all members of the public.

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