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Family pay tribute to their brave little girl who lost battle with rare heart condition

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TRIBUTE: Caroline and Michael Daly pictured with Lily Ellen and her big sister Sarah.

 

By Michelle Crean

A Ballyhar family, whose 20-month-old little girl lost her brave battle with a rare life-limiting heart condition have praised hospital staff for the care she received. Little Lily Ellen Daly from Lisheenacanna, Ballyhar was born with an aggressive Pulmonary Vein Stenosis (PVS) in June 2019.

Diagnosed at just eight weeks old, the brave little girl underwent open heart surgery at just 12 weeks old in Crumlin Children's Hospital. Just a month later she was admitted to palliative care but her parents Caroline (O'Shea) and Michael Daly, vowed to do everything possible to help her. However, as Crumlin had never performed a sutureless repair operation as her condition was so rare her parents decided to go to New York to seek help.

"She was a very happy little girl," her mom Caroline, who is currently on leave from her accountancy job at Prima Finance Killarney, told the Killarney Advertiser.

"She loved her family and her sister. For everything she went through she was very content, you wouldn't think there was anything wrong with her. We got an extra 15 months with her. The surgery in New York was a final option for Lily and sadly it was not successful. Crumlin went above and beyond but they had never done anything like that before for her condition. It was just that the condition was life-limiting."

Sadly, Lily Ellen passed away peacefully on February 26 in the arms of her loving parents in the Intensive Care Unit of Crumlin Children's Hospital.

Following Mass of the Angels in St Gertrude's Church, Firies, Lily Ellen was laid to rest in new Kilnanare Cemetery.

Caroline added that they became part of the Crumlin heart family saying the staff went above and beyond in their care for Lily Ellen.

"It meant so much to us."

At last week's Killarney Municipal online meeting Mayor Brendan Cronin offered his sympathy to the Daly family as Michael works as an engineer with Kerry County Council.

“On a sad note, the local authority extends sympathy to Michael Daly of Ballyhar. He lost baby Lily Ellen Daly during the week. It is an awful tragedy. Michael is a well-known and respected member of Kerry County Council staff.”

The family have asked for donations to be made to The Heart Centre in Crumlin Children’s Hospital www.heartchildren.ie.

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Gleneagle Concert Band cast in major Hollywood Film

  Members of The Gleneagle Concert Band have been cast in a major Hollywood movie currently filming in West Cork. The WWII biopic is inspired by Hollywood legend James Stewart’s […]

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Members of The Gleneagle Concert Band have been cast in a major Hollywood movie currently filming in West Cork.

The WWII biopic is inspired by Hollywood legend James Stewart’s life, highlighting his time as a combat pilot after putting his entertainment career on hold to join the U.S. Army Air Corps.
It’s set to be the biggest film production filmed in Ireland this year, with a U.S. release scheduled for November 2026.

Band Musical Director Vincent Condon said the opportunity came about through a mix of curiosity and perfect timing.

“I read that a major film was being shot in West Cork and got in touch to see if they needed a band. Wartime movies often feature military bands, and they were delighted that I reached out. The film required an all-male band under 25, which is historically accurate. Filming took place at the start of October, and it was a fantastic experience for everyone involved.”

Band Manager Ciaran Lynch described the experience as unforgettable.

“The band was excellent. We did everything asked of us with no fuss, and it was amazing to see how a major movie comes together. In a year or so, we’ll be able to sit in the cinema with our families and point to the screen saying, ‘We were part of that!’”

This latest experience follows the band’s highly successful summer tour to Seville and Gibraltar, where they performed alongside the Midleton Concert Band beneath Seville’s spectacular Las Setas structure. The trip marked the band’s eighth international tour, continuing a proud tradition of representing Killarney abroad.

With opportunities ranging from international tours to movie sets, the Gleneagle Concert Band continues to give its members unique and creative musical experiences both at home and overseas.

Anyone interested in joining the band or enrolling for instrumental lessons is encouraged to get in touch on 087 222 9513.

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Local schools launch initiative to promote healthy technology use for children

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Holy Family NS Rathmore, Raheen NS, Meentogues NS and Shrone NS have teamed up with three other schools on the Cork side of the border to launch an innovative project called Agree to Agree.


This is a community wide effort to help families navigate the challenge of children and technology.


The initiative encourages parents of primary school pupils to make a voluntary pledge around healthy technology use at home.


For younger pupils, this includes keeping children smartphone-free, following age-appropriate guidelines for games and apps, and staying off social media during primary school years.


For older pupils who may already own phones / devices, the project suggests practical steps such as reducing screen time, keeping phones out of bedrooms, avoiding age-inappropriate apps, and learning about digital citizenship and online safety.


In the coming weeks, children will bring home information packs and families will have the chance to sign the voluntary agreement. Two parent webinars are already scheduled for October 26 and February 26.


This Pilot was funded by the Department of Education and Skills under the then Minister of Education and Skills – Norma Foley TD. Schools were invited to participate through Tralee Education Support Centre Director, Terry O’Sullivan.


The other participating schools are Ballydesmond NS, Kiskeam NS, and Knocknagree NS.

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