Connect with us

News

‘Let’s help Alexis’ fund launched for Killarney girl with rare condition

Published

on

TRUST: The 'Let's help Alexis' trust has been set up to raise funds for Stephen and Teresa O'Mahony's four-year-old daughter Alexis to help with her care needs. Photo: Michelle Crean

 

By Michelle Crean

 

A new charitable trust has been set up this week to support a four-year-old Killarney girl who suffers from a rare condition.

A committee of five have launched the 'Let's help Alexis' fund online including a GoFundMe page which has so far raised almost €4,000 of their €50k goal to give Alexis a comfortable life as she grows older.

Currently her parents Steve and Teresa are 24 hour carers for the little girl who has a rare primary metabolic condition called Pyruvate Dehydrogenase Deficiency which has led to a brain abnormality called Ventriculomegaly as well as cerebral palsy, epilepsy, global developmental delay, double hip displacement, cortical visual impairment and sleeping difficulties. Some immediate supports include upgrading their small Seat Leon to a wheelchair accessible vehicle as she has outgrown her car seat making it difficult and uncomfortable for her on long journeys to Dublin for necessary appointments.

The committee is made up of five people who are not related to Alexis' parents and will make all the financial decisions independently of both Steve and Teresa to prioritise Alexis' needs.

"A few people suggested to us a few years ago to set it up," Steve told the Killarney Advertiser this week.
"The committee are planning a number of fundraisers and have set up the fundraising page. I'm delighted that it's independent of us. It's about what is in the best interest of Alexis and the committee will decide. We're very grateful to them for giving up their time."

  He explained that Alexis is now almost 15kgs and has outgrown her car seat and that as their car is compact it's a struggle to fit everything they need for the long trips to appointments in Dublin.

"She is getting big now and her car seat is too small. She has been sanctioned for a wheelchair but it won't be suitable for our car. She needs a van with a ramp for the wheelchair. Before you could stop and lift her out but it's harder now. Even stopping on the long trips she's now too heavy for the nappy changer when we take a break in places like Obama's and then there's health and safety - especially now. With a van we'd have the space for everything. She's on a special Ketogenic diet and food for 24 hours has to be made up the night before and brought with us. And then there's the medicine bags and change of clothes."

Funds raised would also go towards extra physio for her, he added.

"She's getting private and public physio but it would mean we can pay for more private sessions. We're also looking into therapeutic horse riding."

And with the physio, which is done at home, comes an increase in the cost of heating oil which is double what most people spend, he added.

"The trust will mean that Alexis will have everything she needs as she grows older. We just want to give her the best chance possible, not just for now but for the years ahead."   

He added that messages of support from all over have been pouring in since the committee launched the trust.

"You see the good in people. It lifts your spirits and it just shows that everybody in society is equal."

To make a donation to help the family go to GoFundMe: Let's Help Alexis and you can also search the same name on Facebook to find out more.

Advertisement

News

Sliabh Luachra priest celebrates 100th birthday at ancestral home

Published

on

Members of the extended O’Connor family, neighbours, and friends gathered at the ancestral homestead of Fr Sean O’Connor O.S.A. at Doonasleen, Knocknagree, to celebrate his 100th birthday. Fr Sean travelled from the Augustinian Community at Abbeyside, Dungarvan, County Waterford, where he currently lives, to mark the milestone at his childhood home.

Fr Sean was born on 9 June 1926 alongside his twin sister, Peg. He grew up on a farm with his parents and six siblings, all of whom are now deceased. He was baptised in Kiskeam but his family regularly travelled to Sunday Mass in Knocknagree.

He attended the old two-story school in Knocknagree, where he was taught by Miss Dennehy, an educator he later honoured in a poem titled “My first Teacher”. He recalls encountering the blind fiddler Tom Billy Murphy on his school journeys, which helped foster a lifelong love of music inherited from his mother, Maggie Jones, who played the concertina.

Known as Jackie during his youth, he took the name John O’Connor when he moved to New Ross for his secondary education with the Augustinian Order in 1939. He made his simple profession on 24 September 1946 and was ordained a priest in Rome on 13 July 1952.

Shortly after his ordination, Fr Sean’s health failed when he contracted tuberculosis. He spent two years at St Mary’s Hospital in Phoenix Park, Dublin, which included nine months of complete bed rest and two chest operations. The surgeries resulted in the loss of seven ribs and the permanent collapse of most of his right lung. Due to his health, his lifelong ambition to join the foreign missions could not be realised.

Following his recovery, Fr Sean served in various religious appointments across Ireland and England, including Callan, Fethard, Dungarvan, Carlisle, Drogheda, Galway, and Ballyhaunis, before returning to Abbeyside. At his 98th birthday celebration in 2024, it was noted that he was the oldest serving Roman Catholic priest in Ireland and the UK.

For his centenary celebration, Fr Sean wore his priestly vestments to celebrate Holy Mass at an altar prepared in the sitting room at Doonasleen. A framed apostolic blessing from Pope Leo XIV, a fellow Augustinian priest, was displayed on a nearby table.

Due to poor weather and the large crowd, the gathering moved to the new Knocknagree Community Centre for a reception. A special photograph was taken on the day featuring Fr Sean alongside his six surviving first cousins.

As a dedicated Gaelic football follower, Fr Sean was presented with a custom Knocknagree GAA jersey featuring the number 100. He later wore the jersey at the local football grounds for photographs, on a day when Knocknagree secured a league win against Kilnamartyra.

The day concluded with a visit from the Bishop of Kerry, Ray Browne, who travelled to the ancestral home to congratulate Fr Sean. Fr Sean noted that it was a historic occasion, marking the first time a bishop had ever visited the townlands of Doon or Tureen.

Attachments

Continue Reading

News

Gardaí appeal for witnesses following fatal collision in Barraduff

Published

on

By

Gardaí are appealing for witnesses following a tragic single-vehicle road traffic collision that occurred on the N72 near Calfmount, Barraduff, in the early hours of Wednesday morning.

The collision took place at approximately 2:20 am.

The driver of the car, Joshua Kamara Lynch, aged in his 20s and from Ridge Lane, Barraduff, was pronounced deceased at the scene.

His body was removed to the mortuary at University Hospital Kerry for a post-mortem examination, and the coroner has been notified.


The road was closed following the incident to allow for an examination by Garda Forensic Collision Investigators, with local diversions put in place to redirect traffic travelling between Rathmore and Killarney via Glenflesk. It reopened on Wednesday evening.


Joshua is sadly missed by his heartbroken mother Emma, brothers Eric, Tommy, Zion, and Orion, sister Faith, father Matthew, grandmother Cathy, and his extended family and many friends.

He will be reposing at O’Keeffe’s Funeral Home, Rathmore, Friday evening from 6:00 pm to 8:00 pm. His Requiem Mass will take place on Saturday, 27 June, at 11:00 am in St. Joseph’s Church, Rathmore, followed by burial in the adjoining cemetery.

Investigating Gardaí are appealing to anyone who witnessed the collision to come forward. Road users who were travelling on the N72 near Calfmount, Barraduff, on Wednesday morning between 1:45 am and 2:20 am, and who may have dash-cam footage, are asked to make it available.

Anyone with information is asked to contact Killarney Garda Station on (064) 667 1160 or the Garda Confidential Line on 1800 666 111.

Continue Reading

Last News

Sport