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‘Let’s help Alexis’ fund launched for Killarney girl with rare condition

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TRUST: The 'Let's help Alexis' trust has been set up to raise funds for Stephen and Teresa O'Mahony's four-year-old daughter Alexis to help with her care needs. Photo: Michelle Crean

 

By Michelle Crean

 

A new charitable trust has been set up this week to support a four-year-old Killarney girl who suffers from a rare condition.

A committee of five have launched the 'Let's help Alexis' fund online including a GoFundMe page which has so far raised almost €4,000 of their €50k goal to give Alexis a comfortable life as she grows older.

Currently her parents Steve and Teresa are 24 hour carers for the little girl who has a rare primary metabolic condition called Pyruvate Dehydrogenase Deficiency which has led to a brain abnormality called Ventriculomegaly as well as cerebral palsy, epilepsy, global developmental delay, double hip displacement, cortical visual impairment and sleeping difficulties. Some immediate supports include upgrading their small Seat Leon to a wheelchair accessible vehicle as she has outgrown her car seat making it difficult and uncomfortable for her on long journeys to Dublin for necessary appointments.

The committee is made up of five people who are not related to Alexis' parents and will make all the financial decisions independently of both Steve and Teresa to prioritise Alexis' needs.

"A few people suggested to us a few years ago to set it up," Steve told the Killarney Advertiser this week.
"The committee are planning a number of fundraisers and have set up the fundraising page. I'm delighted that it's independent of us. It's about what is in the best interest of Alexis and the committee will decide. We're very grateful to them for giving up their time."

  He explained that Alexis is now almost 15kgs and has outgrown her car seat and that as their car is compact it's a struggle to fit everything they need for the long trips to appointments in Dublin.

"She is getting big now and her car seat is too small. She has been sanctioned for a wheelchair but it won't be suitable for our car. She needs a van with a ramp for the wheelchair. Before you could stop and lift her out but it's harder now. Even stopping on the long trips she's now too heavy for the nappy changer when we take a break in places like Obama's and then there's health and safety - especially now. With a van we'd have the space for everything. She's on a special Ketogenic diet and food for 24 hours has to be made up the night before and brought with us. And then there's the medicine bags and change of clothes."

Funds raised would also go towards extra physio for her, he added.

"She's getting private and public physio but it would mean we can pay for more private sessions. We're also looking into therapeutic horse riding."

And with the physio, which is done at home, comes an increase in the cost of heating oil which is double what most people spend, he added.

"The trust will mean that Alexis will have everything she needs as she grows older. We just want to give her the best chance possible, not just for now but for the years ahead."   

He added that messages of support from all over have been pouring in since the committee launched the trust.

"You see the good in people. It lifts your spirits and it just shows that everybody in society is equal."

To make a donation to help the family go to GoFundMe: Let's Help Alexis and you can also search the same name on Facebook to find out more.

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Fat dissolving injections target stubborn areas

By Jill O’Donoghue from Killarney Toning and Beauty Studio It may sound too good to be true but fat dissolving injections are as effective as the name suggests. They are […]

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By Jill O’Donoghue from Killarney Toning and Beauty Studio

It may sound too good to be true but fat dissolving injections are as effective as the name suggests.

They are administered by our in-house Dr. Micheal Flynn who has been attending our salon for the past 10 years. It is the double chin and neck area that is treated and is suitable for both men and women. If you haven’t heard of fat dissolving, it is a very popular and relatively new treatment that is used to target stubborn pockets of fat on the jaw line and chin area. The injection dissolves and eliminates fat cells in a safe and effective way, making it perfect for dealing with stubborn fat that simply won’t budge with exercise.

The main ingredient is a fat dissolving substance sodium deoxycholate, which is found naturally in the body. This is injected into the treatment area which over time will destroy the fat cells. These are then removed from the body by its own lymphatic system, a complex network that rids the body of unwanted toxins and waste.

It is important to understand that fat dissolving injections are not a weight loss treatment. The injections should only be used on people who are a healthy size or carrying a little extra weight. It’s most effective on the pockets of fat stored under the jawline, known as the double chin, a migration of fat cells from the cheeks to the jaw line.

The injections work at a slow pace. It can take serval weeks for full results, but once it’s gone, it’s gone. The results are permanent, once you don’t gain a massive amount of weight.

The next clinic is Monday August 22. To book an appointment or more information, call Jill on 064 6632966.

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Classic tractor drivers to embark on 400km drive to Killarney

By Sean Moriarty Six members of the Killarney Valley Classic and Vintage Club will set out from County Meath on Wednesday on vintage tractors. They are participating in the annual […]

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By Sean Moriarty

Six members of the Killarney Valley Classic and Vintage Club will set out from County Meath on Wednesday on vintage tractors.

They are participating in the annual Eastern Vintage Club’s Ring of Kerry Tractor Run which is raising funds for the Irish Motor Neurone Disease Association.

Over 50 vintage tractors, including the six Killarney examples, will leave Nobber in County Meath at lunchtime on Wednesday.

After an overnight stop in the midlands on Wednesday night and Newcastle West on Thursday night, the tractors are expected in Killarney town centre just after lunchtime on Friday.

The ‘spectacular show’, now a regular feature of the Killarney summer, will bring the town to a standstill for around one hour.

On Saturday morning the group will depart Tony Wharton’s farm in Fossa before a nine-hour drive around the Ring of Kerry.

The run will finish with a spectacular drive through the Gap of Dunloe.

“We hope to pass through town around 3.30pm on Friday,” said local organiser, Tom Wharton, who is one of the six Killarney-based drivers who will undertake the 400km journey from County Meath to Killarney. “It is always a spectacular show.”

On arrival in Killarney, tractors will be joined by a group of classic cars that will depart Nobber at 9am that morning.

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