Connect with us

News

“Government is failing Lymes disease sufferers” – councillor claims

Published

on

0233203_NEW-MAURA-HR-1057x675.jpeg

By Michelle Crean

A local councillor has been left angered by the Health Minister's comments claiming there was no need for people to travel abroad for Lymes Disease testing or treatment.

TREATMENT ABROAD: Karin O’Shea had no option but to receive treatment abroad for Lymes Disease.

In a letter to Kerry County Council in March, Minister for Health, Stephen Donnelly, said that “there is no need for Irish residents to travel to other countries for diagnosis or treatment”.

However, his words have hit a sour note with Killarney Municipal District councillor Maura Healy Rae who has called on the Council at its meeting last week to write to the Minister asking if the current testing in Ireland at present can diagnose chronic Lyme Disease.

The Independent councillor, who has been actively campaigning for support especially for chronic cases of the disease, said his remarks have angered Lymes sufferers, many who have had no option but to go abroad to seek help.

One such case is St Brendan's College teacher Karin O'Shea who lives in Kilgarvan who raised over €66,000 via GoFundMe to help pay for her vital life-changing treatment in Germany.

"The Minister’s response has not only angered Lymes sufferers, their family and friends who are most aware of their debilitating symptoms, it also displays either a lack of understanding of chronic Lymes Disease on the Minister’s part or a refusal on the part of the Department of Health to acknowledge the inadequacies in relation to diagnosis and treatment offered to Lymes sufferers in this country," Cllr Maura Healy Rae said.

"The testing in Ireland currently, is able to diagnose those who have been recently infected but not those who have become infected over a long period of time. The Irish tests test for antibodies. People with chronic Lymes Disease have suppressed immune systems; their bodies often won’t produce any antibodies, therefore the test will show up negative for Lymes. This explains why so many people have been misdiagnosed with other diseases such as Chronic Fatigue Syndrome, Multiple Sclerosis, and Fibromyalgia."

The German tests - which costs €1,000, with intensive treatment in the region of €40,000 and the post treatment medication €500 a month - test the cells for the presence or previous presence of Lymes and therefore, is a more effective test, she added.

"The treatment currently available in Ireland is in antibiotic form and is effective for those who have been recently infected and before the disease has taken chronic hold. The intensive treatment needed for chronic Lymes sufferers is not available in Ireland.

"Really and truly, why does the Minister think any person would subject themselves to such intensive treatment at such an enormous cost abroad if they didn’t believe it to be necessary and critical to them in having any quality of life and to tackle their severe symptoms? In my view, the Minister’s response shows immense arrogance as it implies he knows better than a sufferer of Lymes."

Advertisement

News

Motorists advised to be careful during bad weather

Published

on

By

Kerry County Council is appealing to people to stay away from exposed coasts while the weather warnings are in place this week.

Met Éireann has issued an Orange Warning for wind for Kerry which is effective from 7am to 3pm on Tuesday. There is also a Yellow warning for rainfall which is in place from 9pm tonight to 9am on Tuesday.

Storm Bram is expected to bring a very strong to gale force southerly winds with the strongest winds along the coast.

Motorists are advised to expect travel disruption on Tuesday with surface water likely on many routes.

Wave overtopping and high tides are expected to contribute to possible flooding in coastal areas.

The Local Coordination Group which includes Kerry County Council, the HSE, An Garda Síochána, emergency services and utilities, is meeting this afternoon to prepare for the impact of Storm Bram.

Kerry County Council announced today that Rossbeigh beach car park had been closed to the public until further notice. Members of the public are also advised not to park or walk near the coast during this period.

Kerry County Council’s weather emergency phoneline will be operational during the weather warning and issues can be reported to 066 7183588.

Continue Reading

News

Killarney Civic Arts Group to hold first AGM

Published

on

By

Killarney Civic Arts, a new group formed to advance cultural awareness and promote participation in the arts, is inviting the public to its inaugural Annual General Meeting (AGM) this month.

The group, made up of artists and arts workers, aims to share experiences and insights with the community regarding the future and direction of cultural development in Killarney and the wider Munster region.


Killarney Civic Arts invites anyone who cares about shaping creative places in the community to connect with them and share their thoughts and stories.


The first AGM will be held in the Deer-hunter lounge at the Dromhall Hotel, (V93PY80), on Saturday, December 13, at 10.00am. The event offers free entry and is hosted in an accessible room.


For further information, the public may contact Dolores Lyne at 087 263 8720.

Attachments

Continue Reading

Last News

Sport